Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Summer school
Namine starts a month of summer school this week.
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Tea party, sans tea
With warm weather come outside tea parties!
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Gardening update!
We made some changes to our front garden, and adding some new raised areas for Namine.
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Mohawk buddies
We put Namine’s newest accessory on her helmet for our first bike ride of the summer.
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Starting a garden
We spent the day with a couple friends to start making a garden in the front yard.
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Miracle League Spring Exhibition game
Namine played in a special Miracle League game before the new season starts.
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Meeting with a state rep
We met with a state representative to discuss the importance of dental programs for children.
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Mysterious stomach pain
Namine was experiencing severe stomach pain, so we spent two days in the hospital.
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Singing in the Plymouth Chorale
Namine sang with a local (a term I use loosely) choir.
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Variety Birthday Bash
Namine volunteered at the Variety charity’s birthday celebration.
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Weekend with Grandma and Grandpa
Jon and I were privileged to have Namine stay with us for two weekends!
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Long weekend at Grandma’s
I spent a long weekend at my Grandparents’ house while my parents celebrated their anniversary.