Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
-
This Is How We Roll Fashion Show
Namine rolled down the runway for her third time in the fashion show for wheelchair users.
-
Haircut before the fashion show
Namine got her hair cut, and just in time for her fashion show!
-
Easter
Namine spent the weekend with my parents, after which we all celebrated Easter together.
-
Fitting for the fashion show
Namine picked out her outfit for her upcoming fashion show!
-
Our storm loving girl
Ever since Namine was little, she has loved thunderstorms. Now, it’s helping her sleep even when the night weather is pleasant.
-
Once Upon a Prom
Namine attended her first prom dance!
-
State testing
We spent the night and morning at a hotel for Namine’s state testing.
-
Snow day
Our plans today were waylaid by inclement weather, but we made the best of it!
-
Escape room
We (finally!) got to do Namine’s escape room.
-
Wild Game Lunch
Namine volunteered at Zachariah’s Acres to help out at a food station for a lunch and auction.
-
Mysterious leg pain
Namine thought her leg was broken. It wasn’t, fortunately, but we don’t know what caused the pain.
-
Sleepover at my aunt’s
This past Thursday and Friday, I slept over at my Aunt CR’s house. I was very excited, so I woke up at like, 5:30 in the morning, stayed in bed for another 15 minutes, then got out of bed and got dressed.