Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Bedtime and Sara
Namine won a goldfish over the weekend. She named her Sara.
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New cardiologist
We met this morning with Namine’s new heart doctor.
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Hand crank class
We went to what was supposed to be a bicycle class for Namine. It turned out to be a great disappointment, nothing more.
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Cooked marshmallows
The weather was finally nice enough to cook outside, so we got together with my parents and sister for some grilling.
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Jelly Belly
Today, mom, Jessica, Namine, and I went to the Jelly Belly carnival.
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Dry nights
Namine has been dry for five nights in a row. Last night was the first in several days that she’d had an accident.
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Stubbornness
Namine is not always cooperative.
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Swimming
While we were in Indiana for Jessica’s cousin’s wedding, we got a chance to go swimming in our hotel’s pool.
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Cracker Barrel
I finally got Jessica to try Cracker Barrel!
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Wedding
Jessica’s second cousin got married yesterday. Namine danced her heart out.
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Hotel check-in
We have arrived, safe and sound.
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Dentist appointment
Namine had an appointment for the dentist the other day. They discovered a cavity.