Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Birthday lasagna and donuts
Namine’s birthday is in a few days, but we made her birthday meal of choice tonight.
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Climbing into the bathtub
Namine has been practicing climbing into the bathtub. It has presented some new challenges, but nothing that a little creativity and determination can’t handle.
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Spot on
Namine is meticulous with her drawings.
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Second fireworks in two days
Namine had more fun at her second fireworks, likely because this one didn’t hurt her chest.
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First official fireworks
Namine loved what we consider her first real Fourth of July fireworks.
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Holter monitor
Remember the Holter monitor? Namine had to wear it for 24 hours.
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Independence
It was not so long ago that Namine still had difficulty climbing into the car from her wheelchair. Now, she can do it with little assistance.
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Basketball camp, week 2
Jessica and I were helping her sister move this weekend, so my aunt took Namine to basketball camp.
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We lost Namine today
For like, five minutes. It felt a lot longer than that, though. No worries, she’s safe and sound.
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Book report
Namine has been reading about giraffes for a book report.
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Basketball camp
Namine’s first day at basketball camp was fantastic. She had so much fun, and cannot wait until next week.
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Hand crank class, again
Tonight was Namine’s hand crank bike class, for real this time. It was, again, a disappointment — but for a different reason altogether.