Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Healed wrist
Namine’s wrist is no longer broken.
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Sport wheelchair meeting
We met with the Marquette students building Namine’s wheelchair. Namine had a lot of fun.
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The struggle is real
We live in Wisconsin, where it is cold in more months in the year than it is warm. Namine gets sick easily, and she loves to play in the snow.
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Hand crank bike fitting
Namine has outgrown her hand-crank bike, so we’ve started looking at new ones.
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Broken wrist
Namine broke her wrist, and we don’t know how.
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Brewers and Build-A-Bear
Namine got to meet several of the Brewers and make her own Brewer Build-A-Bear.
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New walker
Namine’s new walker has finally arrived!
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Tennis, again
Namine went back to tennis practice (not that there was any question of that happening) and loved it more than ever.
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Tennis
Namine tried playing tennis for the first time, and she loved it.
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The importance of non-collapsible wheelchairs
Namine’s wheelchair is sturdier than her last one, and it needs to be.
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American Girl trip
The girls took their yearly trip to American Girl.
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Ortho appointment
Namine saw her orthopedic surgeon for a checkup.