Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Celebrating Christmas
We had a busy couple days celebrating Christmas with family.
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Nutcracker
Namine and I went to see the Nutcracker on Christmas Eve.
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A bittersweet Christmas wish
We spent an evening over at Jessica’s sisters’ to celebrate a couple birthdays. (Happy birthday, sweetie!) There are some steps up into where they live, so I did what I usually do: I carried Namine up in her wheelchair.
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Room to spare
I knew we got a large vehicle for a reason.
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On parking and accessibility
The mindset of accessibility, and consideration for those that need it, has a long way to go.
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A rising wheelchair lifts all equipment needs
Namine’s new wheelchair prompted a change in our apartment. ♿
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Christmas piano recital
Namine had her Christmas piano recital today.
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Decorating cookies
Namine and her cousin decorated cookies.
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Decorating for Christmas
We’re a little late, but we got the tree up!
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A movie and a play
This morning we saw a movie, courtesy of Variety Club. Then in the afternoon, we saw my sister perform in Beauty and the Beast.
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Chest pains
Namine was complaining of chest pains this afternoon, so we took her to the ER. Long story short, she’s fine and we don’t know why she was in pain.
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Doc block
We had to go to the hospital so the pharmacy could refill Namine’s medication.