Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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New wheelchair
This morning, Namine’s new wheelchair was delivered!
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Sports wheelchair and ballet
We had a busy night last night. We met with the Marquette students building Namine’s new sports chair, and then Namine had a screening for the Milwaukee Ballet.
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Basketball drills
Namine was finally able to return to basketball.
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No more broken leg
Namine got some good news from her orthopedic surgeon.
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Trick or treat
Despite the cold, Namine and I had fun trick or treating.
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Pumpkin farms
Over the weekend, we went to two different pumpkin farms.
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Trick or treat volunteering
We had a lot of fun trick or treating at Stein’s.
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Uncomfortable topics
I firmly believe that part of learning is learning to deal with what makes you uncomfortable.
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Presentation at the medical college
Jessica, Namine, and I were invited to speak at the Children’s Hospital of Wisconsin college.
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My Little Pony Superparty
My aunt, Namine, and I attended the opening showing of the new My Little Pony movie.
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Still broken
Namine’s leg is still broken, but it’s healing nicely.
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Autumn wreath
We made an autumn wreath.