Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Hi-tops
Namine got new shoes, and they’re nothing like anything she’s ever worn before.
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Service project
Namine volunteered at Zachariah’s Acres as part of her community service time.
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Visit to the ER
Yesterday Namine told us that she thought her leg might be broken, so we took her to the ER. (The X-rays came back negative.)
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Creation Camp at Zachariah’s Acres
We had a lot of fun at Zachariah’s Acres this weekend for Creation Camp.
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Happy no trache day
Seven years ago today, Namine was decannulated!
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Apple pie
I took some pictures of Namine helping to make apple pie. Here are some gifs (make sure you pronounce it correctly) for your viewing pleasure.
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Needing new AFOs
We’re rethinking a decision made by Namine’s foot doctor.
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Bike ride
Namine and I went for a bike ride.
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State Fair accessibility
This was prompted by our recent trip to the State Fair, but it applies to anyone who labels their services accessible without considering whether or not they truly are.
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On unicorns
Apropos of nothing, Namine asked me last night: “Why are unicorns called ‘unicorns’ and not ‘unihorns’ when they have a horn, not a corn?”
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Parade
Namine was in her very first parade!
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Cardiology appointment
Namine’s heart continues to do well post-Fontan.