Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Busy weekend
We attended a wedding, then while Jessica and I worked at Irish Fest, Namine went swimming with her grandpa.
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New wheelchair ordered!
I am happy to announce that Namine’s new wheelchair has been ordered!
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State Fair
Jessica and I took Namine and her cousin to the State Fair this weekend.
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Accessible sandbox
At my family picnic, Namine got to play in a wheelchair-accessible sandbox.
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Flashback Friday: Namine’s “broken things” song
A few years ago, Namine made up a song and sang it for us.
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Grocery shopping
While on a trip to the store, Namine got a boost of self-confidence.
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Team Up! For Fun Camp
Namine had a lot of fun this past week at camp.
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Small basketball group
It was just Namine, her coach, and one other kid at basketball practice this morning.
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Baseball
The weather was quite muggy tonight for Namine’s baseball game.
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Happy birthday Namine!
Namine turned nine! I can still hardly believe it.
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Almost rained out
It was raining when Jessica and Namine arrived at the YMCA this evening, but fortunately the weather cleared up enough before the game started.
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M&M’s
On Sunday we came up to Aunt CR’s house to celebrate the fourth of July and just have some fun. Namine and I stayed while Paul had to leave Tuesday night to get back to work on Wednesday.