Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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A doctor helps people
Namine explains her viewpoint on a doctor’s responsibility.
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Throwback Thursday: Namine’s ramp
I was browsing some of Namine’s old videos when I came across her old ramp.
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New baseball season
The YMCA Miracle League season is in full swing (pun intended), and Namine is glad to be back.
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Safari Lake Geneva
For Christmas last year, Namine asked for experiences, not presents. My brother and his wife gave her a safari tour; that tour was today.
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When parents are wrong
Parents are not perfect. We make mistakes. It’s important to own up to those mistakes in front of our children.
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Seating clinic
Our luck with getting Namine a new wheelchair may be turning around.
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Bone spur
Namine has a bone spur in her left foot.
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In defense of what is right
Namine stands up for what she knows is the right thing to do.
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No more braces
We got the most amazing news in Namine’s orthopedic clinic today.
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Recital weekend
This weekend was Namine’s dance recital, and she had a wonderful time!
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Dress rehearsal
Namine and I had a blast at our dance dress rehearsal!
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Last day of mini vacation
We’ve enjoyed our long weekend her at my aunt’s. Unfortunately, we have to head home tonight.