Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Lincoln Logs and scooter boards
Namine and I had another fun day of playing.
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Running, biscuits, and more
Namine and I had a very fun first day up at my aunt’s house.
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When Namine almost lost her foot
Five years ago, Namine had her second club foot repair surgery.
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Last rehearsal
Tonight was our last practice of the father-daughter dance before the dress rehearsal.
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Spring piano recital
Namine played in her piano recital today. She played two songs.
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Pulmonary appointment
Namine met with her pulmonary doctor. We were met with unexpected good news.
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RVA Gallery Night
Namine gave her speech on orangutans at the RVA’s Gallery Night.
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On speech and Space Jam
Namine commented on one character’s speech in one of the most unlikely of places: the movie Space Jam.
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Zachariah’s Acres
We visited Zachariah’s Acres, where Namine flew a kite, played the bongos, and went fishing.
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Spring training
Namine had her first baseball practice of the season.
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Free Comic Book Day
Otherwise known as Revenge of the Sixth.
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Father-daughter dance practice
Namine and I had our first dance practice together.