Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Virtual schooling
The Milwaukee Journal Sentinel published an article about Namine attending a virtual school.
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Rearranging Namine’s room
In preparation for putting up Christmas decorations, we cleaned up Namine’s room.
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Thanksgiving education
Namine was happy to explain to her cousins how her legs are different.
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Hair cut
Rockin’ the pixie cut.
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Field trip to the movies
Trip, yes. Field, no.
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Tour de Force Fall recital
The Fall season of Tour de Force ballet has come to an end. Namine has had a wonderful time, and she loved performing in the end of season recital.
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Speed and movement in basketball
Namine is working on maneuvering her sport chair.
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Getting new equipment
We met with Namine’s rehabilitation doctor in an effort to improve her therapy equipment.
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Bowling
Namine had a lot of fun bowling with the Miracle League again.
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Shooting baskets
Namine can do something this week that she couldn’t do even just last week.
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Free day at the zoo
Namine and her cousin had a great time at the zoo!
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Trick or treating
Namine and I had fun trick or treating around our neighborhood. She showed that there are more important things than candy.