Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Accessibility speech
Jessica, Namine, and I gave a talk at Children’s Hospital of Wisconsin on accessibility. ♿
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Ride at the pumpkin farm
Namine and I went on a tractor ride with my parents!
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Arm pain
Namine was experiencing pain in her wrist again, so we took her in to see her bone specialist.
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Dental appointment
Our visit with the orthodontist was less than stellar. We were hoping to be one step closer to Namine getting her braces, but we seem to be trapped in hospital purgatory.
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Bowling with Miracle League
The YMCA Miracle League held a new sporting event: bowling!
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Stein’s Trick or Treat
Namine went trick or treating as a bee!
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Making ghosts
We made paper ghosts!
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Zachariah’s Acres
There was a walk/run/roll at Zachariah’s Acres on Saturday. We didn’t participate, but we did help out the other volunteers.
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Tour de Force kickoff
Namine had a wonderful time at the kickoff event for Tour de Force, the accessible and inclusive program jointly run by the Milwaukee Ballet and Children’s Hospital of Wisconsin.
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Basketball practice
Namine is getting faster and stronger in her sport wheelchair.
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Sprained wrist
Namine thought her wrist was broken. Fortunately, this was not the case.
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Baseball game
We had a great time at the Brewers game. Don’t ask me who the opposing team was, though.