Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Chest pain
We had a little bit of a freak-out when Namine complained of chest pain, but it seems to be nothing more than a pulled muscle.
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A colorful haircut
Namine got her hair cut. She also got a purple streak!
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A day of sports
Namine had a great time at basketball practice and ice hockey.
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Al’s Run
We had a great time running and walking in Briggs & Al’s Run!
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Decorating our shirts
We weren’t able to have a custom design printed on the backs of our shirts, so we made our own.
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Voice-activated lights
I’ve connected a Raspberry Pi and a couple of smart plugs so Namine can turn on a light in her room which she previously could not.
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Echocardiogram
Today’s cardiology appointment went very well.
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Al’s Run t-shirts
We picked up our t-shirts for Al’s Run today!
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Fixed scooter
Namine’s scooter is fixed!
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Seven years ago today
I still can’t believe Namine is in fifth grade!
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Fifth grade
I walked Namine to school for her first day of fifth grade.
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Accepting help
Namine and I went on another wheel run together. We passed a parade, and I’m still processing how people treated us.