Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Strength exercises in basketball
Namine’s coaches have her working on arm strength.
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Teeth spacers
Namine had a dental appointment to get spacers before she finally gets braces.
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Basketball and soccer
Namine had a full day of sports!
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Namine’s first play
Namine took part in her school’s production of Romeo & Juliet.
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Wheelchair soccer
Namine got to try out a new sport today, thanks to the YMCA Miracle League.
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Dental checkup
You’d think that just a checkup and x-ray prior to getting braces would be pretty standard, right? Yeah, you’d think so, but you’d be wrong.
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On being different
We were just finishing up the movie Hellboy.
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Inaccessible bathroom
I don’t know what the women’s bathroom was like, but the men’s at this particular restaurant was not accessible.
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Attending a second school
Namine is attending a new school! She’s also still attending the RVA.
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Tooth extraction recovery, again
Namine is feeling much better after having her teeth pulled, so we spent the day taking down the Christmas decorations.
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Tooth extraction, again
Namine had the remaining two teeth pulled so she can get braces.
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Back to basketball
Namine hasn’t been to basketball practice in a while, due in part to holiday craziness and in part to medical things like getting her teeth pulled. She was happy to return.