Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
-
AFO lift sizes
A little bit about Namine’s leg braces. The more you know
-
Wheelchair-bound
I used to say Namine is “wheelchair-bound,” but now I am more careful with my words. Now I say she uses a wheelchair. It doesn’t bind her, it gives her more freedom.
-
Cardiology appointment
We met with Namine’s cardiologist to discuss some concerns.
-
Tour de Force kickoff
The kickoff event for the Milwaukee Ballet’s Tour de Force program was today. Namine and her friends from the Glissade class performed their dance again.
-
Moving in tennis
Namine has started to learn moving and hitting the ball in her adaptive tennis class.
-
Oral surgery
Namine finally had the last tooth pulled, removing the final roadblock to getting her complete braces.
-
Raise the Roof
Namine performed with her classmates at a fundraising event for the Milwaukee Ballet.
-
New foot braces
Namine recently got fitted for new AFOs. She used them for the first time in therapy today.
-
Why’d you eat a horse named Charlie?
Conversation between Namine and myself:
-
Basketball and tennis
Namine had a full day of sports!
-
Braces
The day has come: Namine has her braces. Well, mostly.
-
Meeting with the dental surgeon
During a consult today, Namine proved to be her own best advocate.