Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Al’s Run t-shirt unboxing
We’ve received our team’s shirts for Al’s Run!
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First day of seventh grade
Namine is excited to start the seventh grade!
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Shalom Wildlife Zoo
We took Namine to a different kind of zoo!
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Wheelchair approval
We continue to pursue getting a new wheelchair for Namine.
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Team Namine’s shirt design
The custom design for our Al’s Run shirts is submitted!
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New wheelchair fitting
Namine was measured for a new wheelchair. Hopefully it takes less than a year for the finished product this time.
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New wheelchair, almost
We started the day expecting a new wheelchair, but now Namine doesn’t have one at all until next week.
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Virtual school orientation
Namine’s school orientation is looking a little different this year.
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Tennis growth
We received the slightly shocking news that Namine has outgrown her tennis racket.
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Moving in tennis
It was a beautiful day for doubles in tennis.
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Art camp, week 2
Namine’s second week of art camp has concluded. She had a blast!
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Late birthday cake
Namine finally got the birthday cake she asked for.