Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Miracle League meet and greet
Namine met some new friends for the new baseball season!
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Heart checkup
Namine had her bi-annual appointment with her cardiologist. Her heart is healthy and doing well.
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Junior Bucks game
We returned Namine’s sport wheelchair and caught part of a basketball tournament.
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Hair donation
Namine got her hair cut and donated it.
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World Clubfoot Day
Today is World Clubfoot Day, so I’d like to take a moment to discuss how it pertains to Namine.
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Opening the door by herself
Namine can once again open the outside door to the apartment.
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Miracle League uniform pickup
We picked up Namine’s new uniform for baseball!
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Getting vaccinated
It’s important that we got vaccinated against COVID-19 because Namine can’t.
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Flower girl
Namine was a flower girl in my sister’s wedding.
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Wheelchair cushion decision
Namine has reached a decision about her wheelchair cushions, but it wasn’t an easy one.
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Farewell, Dr. Black
Namine had her final appointment with her bone specialist and foot surgeon.
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Easter with cousins
Namine and her cousins had a great time on an Easter egg hunt!