Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
-
Final flower girl dress fitting
Namine’s dress for my sister’s wedding is finally complete.
-
Wheelchair cushion delivery
We had a delivery of several new wheelchair cushions.
-
Virtual theaters
For the past eight weeks, Namine has participated in two different theater groups.
-
Special needs services
We met virtually with our new case worker for the Wisconsin support program.
-
New wheelchair
Namine got her new wheelchair, for real this time!
-
A more accessible living room
We rearranged the living room again.
-
Snowball fight
A freshly fallen snow means a daddy-daughter snowball fight.
-
Taking down the tree
Taking down the tree is always a little sad. This one took longer because he left us a little something to remember him by.
-
Post-Christmas party
Namine was taking a virtual art class. They had a Christmas party for the families to join!
-
Christmas celebrations
We had a lot of fun seeing our friends and family for Christmas!
-
Scoliosis checkup
The latest checkup for Namine’s scoliosis means good news for the holidays.
-
Wheelchair measuring
Once more, with feeling.