Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Trans-Siberian Orchestra virtual concert
We attended a Christmas concert in the only way available now — virtually, via livestream.
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Homeschool interview
Jessica was interviewed by the Milwaukee Journal Sentinel about virtual learning.
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Advent calendar fun
We changed things up this year with our Advent calendars. No chocolate here — instead, we have cheese, crafts, and dolls!
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Heart visit and liver ultrasound
Namine had a cardiology appointment followed by a liver ultrasound.
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Roasting marshmallows
We got together with some friends for a bonfire and some s’mores. 🔥
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Patches and stickers
Namine received the first patch for her new cape!
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Making gnomes
We spent the afternoon making a whole bunch of gnomes!
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Setting up for Christmas
We have a smaller tree this year. And for a change of pace, it’s a real tree!
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Thanksgiving at home
We spent Thanksgiving here at home, just the three of us. And you know what? It was really nice.
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Balloon organs
Every once in a while, Namine says something that makes us go, “what??”
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Flu shots and sickness
Namine got sick after getting a flu shot, but we were (sort of) prepared for it.
