trach
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Much news
Happy horse day! Today Namine had equestrian therapy, and Jess said she enjoyed it quite a bit. I’m told the benefits will far outweigh her smelling like a horse. I kid, I kid. But on to other serious matters. Namine also had a cardiology appointment, and I got a call from pulmonology about her decannulation.…
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More pictures, less trach
I had already uploaded all of the original pictures from when we took Namine to get her birthday pictures taken. Jessica asked me to upload all of the pictures that had effects done to them, such as sepia tones, black and white, et cetera. I’ve uploaded the 5×7 so far. I’ll try to get to…
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Decannulation is a go
As Jessica posted earlier, Namine passed her sleep study. This means one thing: decannulation!
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News!
Hello all, It was a not so fun and fun day today. We had a visit back at teach vent clinic where they took a trach asperate, or culture, to see what is growing if anything. As we ran some errands I got a call for different breathers for Namine. While on the phone the…
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Improvement, now with ketchup
Namine seems to be getting a little better, now that she’s on the Tobi nebulizer and a steroid to help keep her wheezing down. She’s only coughed once since I put her to bed, and she didn’t even need much suctioning. Between finishing the breather and putting her to bed, though, she coughed up quite…
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Trach infection pretty much confirmed
As we count down the days toward the result of Namine’s sleep study, we have a new wrench thrown in the works: a trach infection.
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Possible trach infection
Late yesterday and this morning, Namine has had a lot more secretions than usual. In addition, this morning her secretions have been mucusy (is that a word?) and yellow-green, and she’s been coughing and hacking. So Jess called Namine’s pediatrician and her pulmonologist for advice on what to do. Of course the first thing that…
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Picnic day, part 2
I never got a chance to post about the rest of our picnic day, when we went to my uncle’s for the Eiche family get-together.
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After Namine’s sleep study
Kids, as much as I’d like to tell you that Namine had her trach taken out today, alas, I cannot. Contrary to what we were told by lying or possible willful ignorant trach/vent nurses, decannulation is not that simple. We have to wait a week for the results of her sleep study, and then we…
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Fair weather
We went to the Wisconsin State Fair yesterday. Well, I just went after work, but Jessica and Namine spent the afternoon there. It was a good day for it; maybe too good, since I think Namine is feeling a little crispy today. Despite a little sunburn and some sore legs, though, a good time was…
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OrthopIDIOTS
It’s like in Home Alone 2, where Kevin’s mom asks the concierge, “What kind of idiots do you have working here??” He replies, “The finest in New York, madame.” The 23rd of July, a Friday, was Namine’s scheduled foot surgery, and they canceled that. They told us they would call us back the following Monday.…
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Coughing fits are nothing to sneeze at
Namine was up all night a couple nights ago, coughing and hacking. She didn’t seem to wake up much – a few times crying, but I was able to sooth her back to sleep – but I doubt she got much rest. Last night was much better, she only coughed a couple times. She slept…