ENT and therapy

We took Namine in to see her ENT doctor today. She’s been complaining of her ear bothering her, so we feared the worst: an ear infection. Fortunately, that turned out to not be the case.

Tossing cookies

I’m not talking about juggling confectionary treats, nosirree. We suspect that Namine has caught a bug of some kind, possibly flu. It is her bad luck – and ours – that she needed to throw up when we had only one spare set of clothes, and on a day of multiple clinic appointments.

A visit to ENT

Namine’s sinus and ear infections are not getting any better. She coughed nearly all night last night, and so today we paid a visit to the ENT clinic to have her ear suctioned and a nasal culture taken. You can imagine how that went.

Embracing the storm

I actually meant to talk about this the other day. On Sunday night we had a crazy, windy, loud thunderstorm, and Namine could not sleep. But her inability to sleep was not due to fear of the storm; on the contrary, she loved it. Loved it. The constant patter of the rain – and patter somehow does not do the sound justice – and the flashes of lightning, the crashing of thunder, all of these things thrilled Namine to no end. Awake, sitting up in her bed, she laughed and clapped, her energy seemingly a direct proportion to the power of the storm itself. She did not go to sleep until the storm was over, close to midnight.

Namine’s stoma infection

Namine is in the hospital again. Following on the heels of last night’s post (actually, it was probably early morning) is the news that Jessica and my mom took her into the ER this morning. Last night, I was afraid she was going to throw up mucus, because she had so much. This morning, my fears were realized. Twice. So I spent most of the morning with Namine, Jessica, and my mom in the ER. They admitted her early this afternoon.

Decannulation is a go

As Jessica posted earlier, Namine passed her sleep study. This means one thing: decannulation! The next step is to get Namine better. She’s still coughing and hacking quite a bit, and she needs to be fully recovered before they’ll take out the trach.

Trach infection pretty much confirmed

As we count down the days toward the result of Namine’s sleep study, we have a new wrench thrown in the works: a trach infection. We pretty much assumed as much, and Namine’s symptoms seem to confirm it. Her pulmonologist has prescribed an antibiotic – not Toby but something similar – and we just need to keep up with regular breathing treatments. Like, every 6 hours or so.