Caudal Regression Syndrome
Sacral Agenesis, Lumbosacral Agenesis, and Caudal Regression Syndrome are three terms that are often used interchangeably. Sacral Agenesis refers to a condition in which the sacrum (the lowest portion of the spine that forms the joint with the hips) fails to form (agenesis) during fetal development. Lumbosacral Agenesis describes a more extensive form of this condition in which one or more of the lumbar vertebrae may also be missing. Caudal Regression Syndrome refers to the same condition — the missing portions of the spine (the caudal regression) — and the syndrome of conditions that often accompany it.
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Shalom Wildlife Zoo
We took Namine to a different kind of zoo!
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Wheelchair approval
We continue to pursue getting a new wheelchair for Namine.
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New wheelchair fitting
Namine was measured for a new wheelchair. Hopefully it takes less than a year for the finished product this time.
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New wheelchair, almost
We started the day expecting a new wheelchair, but now Namine doesn’t have one at all until next week.
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Tennis growth
We received the slightly shocking news that Namine has outgrown her tennis racket.
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Moving in tennis
It was a beautiful day for doubles in tennis.
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Back to tennis
Namine enjoyed returning to tennis practice!
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Flower girl dress fitting
We took Namine to get her fitted for her flower girl dress!
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Orthopedic appointment
Namine’s orthopedic surgeon gave her a clean bill of health, in spite of her hip still being in pain.
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Bookworm Gardens
We spent the afternoon exploring a literature-themed botanic garden! ??
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Therapy benches
Namine’s new therapy benches have finally arrived! ♿
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Video doctor appointment
Namine had her first virtual checkup.