clinic
-
Cast-off day
Of course when Jessica told Namine this morning that she was going to see her foot doctor, she started freaking out. But today is no ordinary day, and this was no ordinary visit to the orthopedic clinic. Today Namine’s casts were removed, and she is much happier.
-
Appointments today
Namine had to get blood drawn and then pay a visit to the endocrine clinic today. I think it’s safe to say that she knows the hospital, and she thinks that it usually means pain. (I wonder where she got that idea.) I suspect she’ll sleep well at nap time.
-
Ortho clinic, a fall, and a visit to the ER
Jessica and my mom took Namine to her ortho clinic this morning. Just when you thought things were pretty much down to routine, excitement got dialed up a notch. My mom fell walking in to the clinic from the car, and she was holding Namine. Namine seemed unhurt, just shaken up; my mom sprained her…
-
Getting her stitches out
Yesterday Namine had an appointment with ENT to get the stitches in her neck removed. Jess took her to the clinic building, not the hospital. Namine is old enough that we can tell her what’s going on; sometimes she handles it well, and sometimes not. Well, this was a not day. I think the recent…
-
Ramping up
We got a new couch over the weekend. Well, not a new couch. It’s new to us. And orange, if that matters. The poor couch we had before was definitely on its last legs (pardon the pun). We’d bought it before Namine came home the very first time, and for the first several months of…
-
A quick story
I am alone. My best friend, whom I am fortunate enough to have married, is asleep, perhaps dreaming of punching a gastroenterologist in the face. My little love is asleep, oxygenation high enough to justify leaving the mask off for the night. I alone am awake, thinking thoughts known only to me and God, though…
-
GI clinic appointment
The idea of Namine being tube-free is, for lack of a better word, epic. Namine hasn’t used her g-tube in quite a while – months, now – so it makes sense to get rid of it. With it still in, we’re still constantly battling pain, granulation, potential infection (being basically an open wound, like the…
-
Much news
Happy horse day! Today Namine had equestrian therapy, and Jess said she enjoyed it quite a bit. I’m told the benefits will far outweigh her smelling like a horse. I kid, I kid. But on to other serious matters. Namine also had a cardiology appointment, and I got a call from pulmonology about her decannulation.…
-
Plastics appointment
Namine had an appointment this morning with her plastic surgeon, Dr. Denny, the man who did her jaw distraction and cleft palate repair. He has declared her palate completely healed, and she can eat whatever she wants again. Well, within reason.
-
Club foot repair canceled
We got a call this morning from Children’s Hospital. Due to the weather, Namine’s orthopedic surgeon, Dr. Thometz, would not be in today. As a result, her surgery is canceled. They will reschedule sometime early next week.
-
From vacation to decannulation
It’s always hard to get back into the swing of the daily routine after a vacation, even a small one like a 3-day weekend. (Of course, the nature of Namine’s condition and medication needs still require a semblance of routine, even on vacation. But it was still nice to relax and to be able to…
-
Namine’s trach/vent clinic visit
Today is the last day that Namine has to wear arm restraints! Yay! Nothing really much to report from Namine’s trach/vent clinic visit. Last time, they found that she had an infection in her right ear. That’s gone now. We should find out soon if we can get her decannulated this summer. Speaking of, we…