clinic
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Getting the ball rolling
We made the call today to general surgery, in order to get things in motion for Namine to have her next two surgeries: g-tube removal and hernia repair.
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Chest x-ray results
What the title says. Unfortunately, “Namine is not sick anymore” is not part of it. We’re still fighting whatever she has – whatever is giving the raspiness in her chest. On the plus side, though, Dr. Gordon is back in town and we got the okay to bring Namine in for a chest x-ray. Thanks…
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The strength of a child
You might recall, from before all the excitement about Namine getting her own room and the genetics appointment, that Namine has a cough.
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Monitoring growth
I had originally meant to cover everything about the genetics clinic visit in a single post, but you know me. I get a little long-winded. So I decided to split it up, and now I’ll cover what I consider the truly meaningful stuff that came of the’s appointment.
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By any other name
Today Jessica and I took Namine to her genetics appointment. It wasn’t so much for her benefit, however, as it was for ours, as her caregivers and advocates.
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…It’s another
Jessica took Namine to the pediatrician this afternoon.
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If it’s not one thing…
Last night Namine had a fever of 101.1. But that was taken under her armpit – she doesn’t quite yet get the whole idea of holding the thermometer under her tongue – and I’ve always been told that you should add a degree to an armpit temp. So make that 102.1. I gave her some…
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Best laid plans
Yesterday morning started out less than stellar: Namine woke up coughing – and not just any cough. It sounded like the croup was back, and she threw up shortly after she took her morning medicine. Her cough improved but didn’t go away after I gave Namine her breathing treatment, so I called the pediatrician. We…
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Orthotics appointment today
Jessica took Namine in to see orthotics today.
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Coughing fits, and a clinic visit
Yesterday was a pretty fun day. Jessica, Namine, and I went over to my mom’s house for lunch. My dad went out and got a sled for Namine, and he ran around the front yard with a bundled Namine in tow. (I would have loved to do the towing, but I was stricken with a…
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Emergency appointment
Namine’s cough has been pretty nonexistent lately; during the night, at least, we haven’t heard her cough at all lately.
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Orthotics
It’s a fancy word for leg or ankle braces, really. Namine had an appointment today to get fitted for her new leg braces. What we’ve been calling her “braces” are just the lower halves of her casts. In order to begin therapy to build strength in her legs – the ultimate goal being to see…