Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Covid booster
Namine was finally able to get her third Covid shot.
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On “Frankenstein”
Since Namine read the story of Frankenstein, she’s been thinking about what it means to be a monster.
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The bath lift is portable
It’s nice that the bath lift can be moved between bathrooms.
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Spanish class field trip
Namine had a different kind of field trip with her Spanish class.
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Teaching herself to swim
Namine taught herself to swim at Disney World.
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Ballet is back!
Namine was thrilled to join in-person ballet class again!
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Kindness party
It’s not a Valentine’s party.
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Freshman year orientation
Who told our daughter she could grow up?
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CHD awareness week
Let’s talk about CHD awareness.
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New orthopedic doctor
We met Namine’s new ortho doctor today.
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Eye checkup
It looks like Namine needs glasses again.
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Virtual winter party
We had fun participating in a virtual holiday party!