Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
-
Christmas with the Eiches
We celebrated Christmas with both sides of our families, but not necessarily in the ways we expected.
-
Cookie Day times two
Namine helped make cookies twice in one day.
-
St. Nick’s scavenger hunt
We celebrated Saint Nicholas Day, albeit a day late, with a scavenger hunt.
-
Setting up the tree and more
We had a lot of fun decorating in preparation for Christmas!
-
Variety holiday party
We attended the Variety holiday party. We were so happy to see our friends again!
-
Disney World accessibility
Our family vacation in Disney World was filled with all kinds of accessibility drama.
-
Nom Nom Productions presents: Manger Musical
Namine put on a small Christmas play for us (and you).
-
Bath lift
Namine’s new bath lift arrived today.
-
Flower girl redux
Namine was the flower girl for my sister’s second wedding.
-
Halloween gingerbread house
Namine had fun building her spooky gingerbread house.
-
Hide and treat
Namine wasn’t feeling well, so the day we planned wasn’t the day we had. Despite that, we still had some Halloween fun!
-
Virtual speech at the medical college
Jessica, Namine, and I were asked to speak once again to the Medical College of Wisconsin about equipment, accessibility, and patient support.