Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Shop with a Cop
Namine participated in an event at Dick’s Sporting Goods. She got to pick out some new equipment for the sports she plays, and more!
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Hosting Thanksgiving
We tried to host Thanksgiving for both sides of our family, with mixed results.
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Bathroom a11y
Those are ones, not Ls, but we did have an ally in starting our bathroom remodel to make it more accessible.
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Escape room
While my mom was cooking with my Aunt Melissa, my dad and I went to a breakout room event hosted by The Ability Center!
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Trick or treat
For the third (and final, for this year at least) time, we went trick, and trunk, or treating.
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Trunk or treat
We went to a trunk or treat here in town.
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X-rays, routine and otherwise
What was meant to be a routine trip to the orthopedic doctor ended up including one more X-ray than we expected.
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Alouette
Namine playing a certain song takes me back to my own time in high school.
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Stein’s trick or treat
Namine went as a piggy at Variety’s trick or treat event.
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Talk at the Medical College
It’s that time again! We were asked back to the Medical College of Wisconsin to give our yearly talk on equipment and accessibility.
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China Lights
We spent the evening with friends seeing the China Lights exhibits.
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Fall Fest Dance
Namine attended her first school dance!