Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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A warmer evening baseball
It was another great evening for baseball, and a warmer one than last week.
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Inclusive Fall Festival
We took Namine to a Variety family event, the second annual Inclusive Fall Festival.
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Night baseball
It was a clear evening, perfect for baseball but for the cold.
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Apple picking
We went to an apple orchard with some friends!
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Fall Fest
We went to a fall harvest festival at the park where Namine has Team Up Camp.
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Wheelchair loaner
Namine received a “new” (to her) wheelchair and was measured for her real replacement chair.
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Foot laceration stitches out
Namine got the stitches in her foot taken out.
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Pain managed, time to break free!
Namine was given the all-clear to go home! We just had to wait for our discharge papers.
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Foot laceration pain management
With the larger threat of infection all but removed, the focus now is on pain management.
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Foot laceration complications
The pain in Namine’s foot from her fall was so out of control that we ended going back to the ER.
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My tipped wheelchair
My dad wrote about when I tipped my wheelchair. This is what happened, from my point of view.
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Tipped wheelchair and foot laceration
Namine’s wheelchair fell on top of her. Fortunately, she did not break any bones. She did suffer a pretty nasty cut on her foot.