hospital
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Today
Namine has had quite a busy day. She was sitting and playing and visiting with Great Grandma and Great Grandpa and watching it snow. Namine also has hit the stage of stranger danger. It has not been fun all day. Everyone that has come into the room that was not family she cried and clung to…
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Contentedness and misery
I am home now. The plan is to get some sleep – actual sleep in my own comfy expensive bed – before going back to the hospital tomorrow morning, then going to work. But first, an update! Because much has transpired in a single day, and it feels like we’ve been there a week. We…
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What time is it?
I’ve been up all night, trying to make sure Namine doesn’t pull out her distractors. Even through the haze of drugs and wooziness of a tiring day, she still makes plain her dislike of artificial attachments.
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Jaw distraction complete
Namine’s jaw distraction surgery is done and she’s doing well!
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Surgocalypse Now
After a hard morning, Namine is in surgery now. Waiting and not knowing is always hard.
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Clinic Visit
Good news from the plastic surgeon, plus more excitement than we planned for.
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Namine is in the PICU
I know lots of people are waiting with bated breath on how Namine is doing, and I can’t type any faster. Jessica and I were going to see how Namine did today, and perhaps take her in this evening if we felt she wasn’t doing much or any better. Well, that was this morning. But…
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I made Namine throw up today
It was not purposeful, believe me. Namine, as I’ve posted recently, has had a lot more secretions lately, and we weren’t sure why. She’s been on an antibiotic for roughly a week now, but that doesn’t seem to be helping. Namine started to gag this evening during one of many suctionings (is that even a…
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Visiting the plastic surgeon
Today Jessica took Namine to see Dr. Denny, the plastic surgeon. After the results of the sleep study, CT scan, and bronchoscopy, he said that she’s a good candidate for having a jaw distraction. We know she’s doing well, but it’s still reassuring to hear a doctor say it. Namine will be scheduled for the…
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Sunday school and volleyball
It’s been a full day. Kinda hard to believe that it’s already 4 in the pm, actually. The day flew by!
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Bronchoscopy
Today, kids, Namine had her bronchoscopy. According to Wikipedia (since everything on the Internet must be true), a bronchoscopy is “a technique of visualizing the inside of the airways for diagnostic and therapeutic purposes.” Sounds good to me. The purpose of this, as it relates to The Feisty One, was to determine if she needs…
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Finally:)
Sorry everyone for not posting more often. It has been quite a hectic past couple of months. Namine has been home since March and doing great. We spent two days in the hospital for heart monitoring and they called it equipmentitis. She has been stating in the low 90’s to even 100% O2 stats at…