food

  • Sickness, scarfing, and scooting, oh my

    Namine is doing better and better every day, but she’s not quite 100% yet. She still needs oxygen while she sleeps, and she’s still coughing a little bit during the day. But she’s done with her Tobi meds and oral antibiotic, she’s coughing less, and what little she is coughing, she’s getting mucus out of…

  • We tire of the hospital

    Thankfully, we did not have to go to the hospital again tonight, but we almost did.

  • Still in the hospital

    Namine will be in the hospital for at least tonight, maybe tomorrow night as well. She still has an infection, and she’s still coughing up mucus, though admittedly it’s not green mucus anymore. Her disposition has improved quite a bit, though she’s not quite her usual lively (and hungry) self. We’ll get there, though.

  • Appointment day

    Namine had an appointment today, a checkup visit with Dr. Denny, her plastic surgeon. (Why are they called plastic surgeons? They operate on people.) Just to make sure her jaw is doing okay, and all that lovely stuff. And tomorrow’s the big day! We check in at the hospital tomorrow at 10.

  • Namine’s fever is going down

    I took Namine’s temp tonight before putting her to bed, and it was 99. That’s down from 100, so we’re getting there. She’s chewing on damn near everything, and this was even after dinner, so I’m pretty sure her teeth are bothering her. I know her two-year molars are coming in, so that would pretty…

  • Countdown to decannulation

    Well, kids, we’re in the final week before Namine gets rid of her trach.

  • Fatten her up already!

    Namine has had weight issues all her life. Right now she’s stuck at 17-18 pounds, and it doesn’t look like she’s going to put on more weight any time soon. It doesn’t make sense, because she’s obviously growing, getting longer, but she’s not putting on weight like she ought to. Naturally, her doctors scold us…

  • Decannulation is a go

    As Jessica posted earlier, Namine passed her sleep study. This means one thing: decannulation!

  • Fries and ketchup, hold the fries

    We went out this evening, with the intention of stopping by the UPS store to pick up a package, going to dinner, and stopping by Jess’s mom’s apartment before heading back home. Let’s just say things didn’t exactly go to plan. That’s okay, though. We still had a fun time out together, and we got…

  • Improvement, now with ketchup

    Namine seems to be getting a little better, now that she’s on the Tobi nebulizer and a steroid to help keep her wheezing down. She’s only coughed once since I put her to bed, and she didn’t even need much suctioning. Between finishing the breather and putting her to bed, though, she coughed up quite…

  • Picnic day, part 2

    I never got a chance to post about the rest of our picnic day, when we went to my uncle’s for the Eiche family get-together.

  • After Namine’s sleep study

    Kids, as much as I’d like to tell you that Namine had her trach taken out today, alas, I cannot. Contrary to what we were told by lying or possible willful ignorant trach/vent nurses, decannulation is not that simple. We have to wait a week for the results of her sleep study, and then we…