food
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Fair weather
We went to the Wisconsin State Fair yesterday. Well, I just went after work, but Jessica and Namine spent the afternoon there. It was a good day for it; maybe too good, since I think Namine is feeling a little crispy today. Despite a little sunburn and some sore legs, though, a good time was…
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The kids, they are a-changin’
Namine is getting so big, we can hardly believe it. I have some momentous news, and it involves wheels. We went to a special needs donation center called Katy’s Kloset – think of it as a Goodwill for disabled people, for lack of a better description – and found a little wheelchair for Namine.
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Movie night
Jess, Namine and I went to see Marmaduke at the budget theater yesterday evening. Of course we’d never taken Namine to a movie theater before; we didn’t know how she’d do. But we figured, hey, it’s just $2 per person and Namine herself was free, so why not give it a try?
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Happy birthday Namine!
Namine turns 2 today! She’s come so far in such a short time, but it doesn’t feel like a short time. We’ve been through so much, and she’s just as strong, if not stronger. Judging by how sassy she is lately, she is definitely 2. I think she’s most likely eat more cake this time…
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In step with orthopedics
I would have liked a little more notice than this, perhaps, but it’s still nice to know ortho hasn’t completely forgotten about us. We got a call last week saying they wanted to do Namine’s foot surgery (feet surgery? It does encompass both feet) this month, on the 23rd. I guess the opening just became…
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From vacation to decannulation
It’s always hard to get back into the swing of the daily routine after a vacation, even a small one like a 3-day weekend. (Of course, the nature of Namine’s condition and medication needs still require a semblance of routine, even on vacation. But it was still nice to relax and to be able to…
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We should have named her “Hoover”
Namine is eating so much now that her palate is fixed, it’s not even funny. When I got home from work last night, she still had therapy going. The therapist told me she ate so much stuff (of course I don’t remember everything) and then for dinner, she ate even more. She likes puffcorn (like…
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Rummage sale!
You know, all too often we focus on the bad and forget about the good. So I end up posting when Namine has surgery, or is sick, or something goes wrong. But the point of her blog is not just to document and communicate her problems and issues, but also to tell people about how…
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Namine: 2, Allergies: 1
Today Namine had an appointment at Children’s Hospital with the allergy people. (I don’t really know what the department is really called. I doubt they call themselves “allergy people.”) Last time, we found out that she was allergic to cheese (but we’ve stayed away from all dairy, just to be safe) and rice. Today, they…
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In the ER again
So we’re in the ER once more. Namine has pretty bad secretions and cough again, but the main reason we’re here is a little more delicate. I hope she won’t need to be admitted, but we’ll see, I suppose. We’re still waiting for them to actually do something.
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Values and priorities
Because we are responsible parents, we feel obliged to teach Namine the most important things in life early on.
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Clothing optional
So I’m sitting here with Namine eating dinner, and I look up, and she’s taken her shirt half off. I have no clue how she did it. So I put her shirt back on, and when I went into the kitchen to get Jessica a glass of water, by the time I got back, she…