Double inlet left ventricle heart defect
Double inlet left ventricle is a heart defect that is present from birth. It affects the valves and chambers of the heart. Children born with this condition have only one working pumping chamber in their heart.
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Obamacare saved my daughter
Losing the Affordable Care Act would be devastating. Without it, my daughter would most likely be dead.
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Presentation at Marquette
This afternoon Jessica, Namine, and I gave a presentation to an engineering class at Marquette University.
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On school and support
Every year since Namine was four, we get these memories that show up in our “On This Day” Facebook feed. The memory in question is about us pulling her out of school.
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Fenestration follow-up
Namine’s fenestration might not be closed after all.
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MRI: home again
We’re back home from Namine’s MRI.
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MRI: now, we wait
We got up super early this morning in order to get to Children’s Hospital for Namine’s MRI.
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Happy retirement, Dr. Gordon
Last night was the retirement party for Dr. Gordon, who has been Namine’s special needs doctor, well, pretty much since birth.
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Hope for the future
In a private special needs group I follow, the question was asked: “In unthinkable circumstances, should hope be offered?” Here are my thoughts.
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One less med
Last week Namine had a cardiology appointment. It was just a routine check up.
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Al’s Run shirts
I picked up Team Namine’s shirts for Al’s Run this afternoon.
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Second fireworks in two days
Namine had more fun at her second fireworks, likely because this one didn’t hurt her chest.
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Holter monitor
Remember the Holter monitor? Namine had to wear it for 24 hours.