Double inlet left ventricle heart defect
Double inlet left ventricle is a heart defect that is present from birth. It affects the valves and chambers of the heart. Children born with this condition have only one working pumping chamber in their heart.
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New cardiologist
We met this morning with Namine’s new heart doctor.
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Swimming
While we were in Indiana for Jessica’s cousin’s wedding, we got a chance to go swimming in our hotel’s pool.
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Dentist appointment
Namine had an appointment for the dentist the other day. They discovered a cavity.
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Wheelchair-friendly suitcases
The three of us have been on the hunt for a suitcase suitable enough for Namine to carry with her. We found some pretty decent prospects today.
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At the pain clinic
That sounds rather sinister, doesn’t it? “Welcome… to my house of pain.” Not so, however. Namine simply had an appointment to discuss her headaches.
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A case for choosing life
Jessica and I have been to the hospital more times than we care to consider. All that has come with great cost, but great benefit too. I’d like to impart something. Not wisdom — I wouldn’t assume that much hubris; but at least experience, and perhaps understanding.
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The most inspiring thing
I asked Namine a serious question. I was not prepared for her answer.
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IEP season
As the year goes on, I am beginning to see news about IEPs from many of the special needs folks whom I follow on various social networks. I do not envy them.
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The way things are
At the mall yesterday, Namine gave us a lesson in acceptance.
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Namine’s wish
We found out not too long ago that Namine qualifies for Make A Wish.
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Roar ‘N Run
Something came in the mail for me, but it’s really for Namine.
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#triggered
Thanks to Tumblr and its so-called “social justice warriors,” the notion of having an emotional trigger is diluted somewhat. But as I found out firsthand, sometimes it’s real.