Double inlet left ventricle heart defect
Double inlet left ventricle is a heart defect that is present from birth. It affects the valves and chambers of the heart. Children born with this condition have only one working pumping chamber in their heart.
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2014 in review
I started out the year writing about Wolff’s Law. It seems fitting now, seeing how Namine has grown, and continues to grow — despite the assurances of doctors.
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Christmas dress
We didn’t have the chance to go shopping for Namine’s Christmas dress until this past weekend. By this point, most stores have already moved onto Spring clothing, so Christmas clothing was in short supply.
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Cardiology
Namine had a follow-up to the Fontan procedure.
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The last day
Alas, every vacation must end. And to that end, today is our last day in Florida.
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A cold day out
It was significantly colder today than yesterday.
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Tough questions, hard answers
Namine is asking more difficult questions about her own disabilities.
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Drawing her own medicine
Namine has shown an interest lately in drawing her own medicine. She’s always taken her medicine seriously (pun intended), mostly because we’ve always been honest with her from the start about why she has to take so much medicine at all. (And to be frank, she doesn’t have nearly as much medicine as she used…
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Headaches
Namine has been complaining of headaches for over a month now, so last Friday we called the hospital to have her seen. While there is a headache clinic at the hospital, Namine’s doctor wanted to see her himself before just sending her off to the clinic.
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Bad timing
Namine’s cardiologist had great news. His timing, on the other hand, not so much.
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At the state fair
Jessica and Namine went with my mom and sister to the state fair yesterday. My dad and I joined them after work.
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Cardiology appointment
Nearly a year after completing the Fontan, Namine’s doctor cut back her medication as a response to her healthy heart.
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Celebrating a healthy heart
Six months after completing the Fontan, Namine’s heart is doing phenomenally well.