Namine had her third and final heart surgery, called the Fontan, back in 2013. When all was said and done, the surgeon left a hole, called a fenestration, to relieve blood pressure around her heart. Because of this, the procedure Namine had is referred to as a “fenestrated Fontan.”

Since the fenestration is essentially a hole in the heart, it can’t remain there indefinitely. It eventually has to be closed, either naturally or surgically. In some cases, the fenestration will close on its own; this is what Namine’s cardiologist believed happened, since her blood-oxygen level had stabilized nearly a year later.

Now, however, Namine’s blood-oxygen level is lower, and the only explanation the doctors have is that the fenestration might not be closed, after all. For reference, a physio-typical person will have a blood-oxygen level of 98-100. A year after the Fontan procedure, Namine’s O2 averaged around 94-96. Now, her O2 has dropped to around 92. It’s not so low that it poses a danger to her, but if it drops below 90 and stays that way, then she may need to have the procedure to close the fenestration.

This post is part of the timeline: Heart Repair – an ongoing story on this site. View the timeline for more context on this post.

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