Double inlet left ventricle heart defect
Double inlet left ventricle is a heart defect that is present from birth. It affects the valves and chambers of the heart. Children born with this condition have only one working pumping chamber in their heart.
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Chest pain
We had a little bit of a freak-out when Namine complained of chest pain, but it seems to be nothing more than a pulled muscle.
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Echocardiogram
Today’s cardiology appointment went very well.
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State Fair
We all had a great time at the Wisconsin State Fair!
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Heart monitor results
We have the results from Namine’s heart monitor, and they’re mostly good.
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Informed decisions
There was a discussion on one of the Facebook groups I belong to on how and when to educate one’s child on surgery. I responded there with a simplified version of what follows, but I have more to say (as I usually do).
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Heart monitor
Namine saw her cardiologist for a heart checkup.
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Presentation at Marquette
Jessica, Namine, and I gave another talk to the bioengineering class at Marquette University.
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Chest pains
Namine was complaining of chest pains this afternoon, so we took her to the ER. Long story short, she’s fine and we don’t know why she was in pain.
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Doc block
We had to go to the hospital so the pharmacy could refill Namine’s medication.
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Presentation at the medical college
Jessica, Namine, and I were invited to speak at the Children’s Hospital of Wisconsin college.
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Cardiology appointment
Namine’s heart continues to do well post-Fontan.
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The good and bad of labels
The dark underbelly of the special needs community is the dislike of the label of “special needs” itself. That, combined with the fact that many able-bodied people are writing and speaking for disabled people (both by professionals and caregivers), can be a recipe for disaster.