Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Make A Wish: Disney World
As the saying goes, I’m going to need a vacation after this vacation. That’s not a bad thing, though! Namine’s first time at Disney World was tiring, but magical.
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Make A Wish: Sea World
We spent the day with sea life: dolphins, sting rays, whales; we even dined with the sharks.
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On proof and existence
When Namine got her nails done and a princess crown face paint, she noticed something on the ceiling.
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Make A Wish: staying in
This morning Namine got autographs from several Disney characters.
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Make A Wish: Winter and Hope
We spent our first full day here by visiting the dolphins Winter and Hope.
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Make A Wish: a rough start
We discovered today that Namine gets airsick.
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Baseball
Namine loved her first baseball practice!
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Special Needs picnic
Over the weekend we attended the annual Special Needs picnic, put on by Children’s Hospital.
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Make A Wish party
Tonight was Namine’s “bon voyage” party before we leave for her Make A Wish next week.
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Al’s Run shirts
I picked up Team Namine’s shirts for Al’s Run this afternoon.
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Walking stronger
Namine impressed us in therapy today.
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Baseball and basketball
Namine is starting baseball this Tuesday, and we thought it was a good idea to introduce her to the basics.