Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Ballet and jazz
Namine loved going back to dance class.
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Trick or treating
It was a dark and stormy night.
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An evening at Urgent Care
Last night I took Namine to Urgent Care. She’s a little sick (again slash still), but doing okay. Here are some anecdotes from the evening.
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New toys
Well, new to her.
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Independence: a recap
Namine prides herself on her independence, as any child does.
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Take care of pets
I want to share a little bit of Namine’s imagination.
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Cooking with Namine
Join us this week as Namine explains how to make a sandwich.
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Basketball drills
Namine’s basketball practice this weekend started to tie together some of the individual skills that she’s been learning.
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The best part
Many people have asked me what the best part of our Make A Wish vacation was. I jokingly answer that it was when Belle complimented me on how I did Namine’s hair.
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Disney Princesses
I said I’d post pictures, didn’t I? Well, here they are: Namine’s visits with Disney princesses.
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Make A Wish: the trip home
We started on our trek home today. Since we’re driving back, and not flying, it’s going to take three days, instead of three hours.
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Make A Wish: Gatorland
We spent our last full day here in Florida visiting the last place on Namine’s wish list: Gatorland.