Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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One Christmas wish
Namine asked for one thing in particular: her very own kitchen.
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Christmas Eve eve
Since we have a busy couple of days ahead of us, we let Namine open some presents this evening.
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Piano Recital
We had a wonderful time at Namine’s piano recital this weekend.
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Dancing her heart out
Near the end of dance this week, the teacher introduced the class to a new game called “Pass the Mike.”
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A moment’s thoughtless word
Namine hurt our feelings. She didn’t intent to, but it’s my hope that she learns from this.
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Decorating for Christmas
We put up Christmas decorations over the weekend!
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Dance class
Namine was tired after dance class, but happy.
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Christmas music
Namine is working hard at piano.
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Basketball practice
Namine and I went to basketball by ourselves this weekend.
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Dancing is hard work
Dance class was difficult for Namine this week.
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Dancing by herself
Last night’s dance class saw Namine doing more on her own.
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Museum hopping
A couple weekends ago, we took Namine and her cousin to three museums in Kenosha.