Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Sharks and Minnows
I’m pretty certain Namine’s favorite part of Saturday’s basketball practice is playing Sharks and Minnows.
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Up down, up down
Keeping up with Namine’s dance classmates is hard work.
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Kvell
I subscribe to some writing prompt newsletters. This morning’s contained an unusual directive. “You must use this word, in whatever context you like, in today’s prompt: kvell.”
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44 seconds in
Namine is working hard at learning her recital dance.
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Back to basketball
Namine had been sick for a while (’tis the season), but she was finally feeling well enough again to attend basketball practice.
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Jazz recital practice
Namine started learning the dance for her jazz recital.
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Always a hope
A child’s insight sees much. Tonight, Namine taught me an important lesson.
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Preparing for the dance recital
We went to the dance studio where Namine takes ballet and jazz early. There was a meeting on the upcoming recital, and we didn’t want to miss it.
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Hope for the future
In a private special needs group I follow, the question was asked: “In unthinkable circumstances, should hope be offered?” Here are my thoughts.
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Ortho clinic
We met with Namine’s orthopedic surgeon to discuss possible surgery.
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In dance class
I can’t help but think, Why couldn’t her school have been like this?
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One less med
Last week Namine had a cardiology appointment. It was just a routine check up.