Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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A night off
Namine stayed home from dance to rest her leg.
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A day of resting
Two days after breaking her leg, Namine is starting to feel better.
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Broken leg
Namine broke her leg over the weekend.
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Grandpa Goes to Dance
Grandpa here. Last night I had the pleasure of accompanying Namine to dance class.
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Nighttime conversation
In which Namine tells me what kind of parent I am.
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Share your ears
#ShareYourEars and @DisneyParks will donate $5 to @MakeAWish!
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Valentine’s Day party
Namine had a lot of fun at her school’s Valentine’s Day party.
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Milwaukee Comic Con
We found a pretty good pile of My Little Pony comics, and Namine got a picture with Harley Quinn.
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Tournament disappointment
Today was supposed to be Namine’s first basketball tournament, but she didn’t get to play.
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Stretches and dancing
Dance is sometimes difficult, but that has never kept Namine from giving her best effort.
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Broken wheelchair
No worries, though. It’s been fixed now.
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What might have been
Namine is a talkative girl, but she tends to keep her deepest thoughts to herself. Every once in a while, though, she opens up to us.