Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Learning to skate
Last weekend, Namine got to try something new: sled hockey.
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No vacation
We were so looking forward to going to Florida this coming week, but that’s no longer a possibility. Namine has suffered some complications due to her broken leg, and her orthopedic doctor has instructed her not to travel.
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Batman French Toast
For Easter, Namine had gotten a DC Comics cookbook. It’s nothing more than a simple kids’ cookbook, but superheroes make everything more awesome.
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Back to dance
Namine was welcomed — I should say swarmed — by her dance mates on her first day back since breaking her leg. The way they welcomed her, I could tell she was missed.
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Circus
Yesterday we went to the Tripoli Three-Ring Circus, courtesy of the Variety Club.
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Getting the cast off
Namine got her cast off today, but her leg is still broken.
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Dyeing Easter eggs
Just some pictures of Namine having fun coloring Easter eggs.
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Philosophy of a hero
Over the weekend, we took Namine to see Marvel Universe Live. Seeing it prompted some questions from Namine.
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Marvel Universe Live!
We took Namine to see Marvel Universe Live yesterday. It was amazing!
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Palermo’s tour
Namine had a field trip yesterday to Palermo’s Pizza Factory.
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More like herself
Namine has been moving around more on her own, climbing and scooting as much as she can.
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What is love?
Sometimes I like to ask Namine questions to which there is no wrong answer. The answer she gives me is the right one for her.