Eiche fam

Namine

Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.

  • Dance recital

    Dance recital

    After weeks and weeks of practice, it was finally time for Namine’s dance recital this weekend.

  • Bike Buddy

    Bike Buddy

    This morning we headed out to Independence First, a disability equipment provider. For the next three weeks, we have on loan a combination wheelchair and bicycle. They call it a Bike Buddy.

  • Piano and dance

    Piano and dance

    Last night was Namine’s last dance class before her recital. But before that, she had a piano recital.

  • Recital practice

    Recital practice

    With just one more week of practice, Namine’s jazz class is working hard to learn their dance.

  • Sled hockey

    Sled hockey

    Over the weekend Namine had the chance to play sled hockey again. She loved it so much the first time, we had to do it again.

  • Super long speech appointment

    Super long speech appointment

    A long time ago (it sometimes seems to us), long appointments were the norm. I’m not just talking about a mere two or three hours; in the days of Namine’s infancy, it was typical to spend literally six to eight hours at the hospital.

  • Coat of arms

    Coat of arms

    Namine gave her very first speech yesterday, and she did a fantastic job.

  • Dancing unhindered

    Dancing unhindered

    Namine’s dance class learned the rest of their recital song.

  • Namine’s new kitchen

    Namine’s new kitchen

    Yesterday my aunt helped us rearrange our kitchen.

  • Miller Stadium twice in one week

    Miller Stadium twice in one week

    This evening we went to a Brewers game, courtesy of Variety Club. This comes not even a week after Namine got to go on a tour of Miller Stadium with the YMCA Miracle League.

  • PALS test

    PALS test

    Namine had her annual PALS test yesterday morning. Despite however nervous she might have been, she did just fine.

  • Last basketball

    Last basketball

    This week was the last wheelchair basketball session of the season. Namine’s leg was still in pain, but not so much so that she didn’t want to go.