Namine
Namine Olivia Eiche was born on July 15, 2008 with a double-inlet left ventricle heart defect; Pierre Robin sequence, a condition that resulted in a regressed jaw and a partial (U-shaped) cleft palate; caudal regression syndrome (also known as sacral agenesis), which damages the growth of the tailbone and legs, also giving her clubfoot; and scoliosis.
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Princess dress
We met with Becky, the woman who made Namine’s Make A Wish dress. It is nothing short of amazing.
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Hot air balloons
A trip south to see hot air balloons ended in disappointment, but we still had fun.
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School orientation
We attended the orientation for Namine’s school year.
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Back to school
We’ve finally caught up our bulletin board!
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Disillusioned
At one point or another, we all realize our heroes are not what we once thought.
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Haircut
Namine got her hair trimmed today.
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Mystery illness
It’s been nearly a week, and we’re still no closer to understanding why Namine is sick.
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Dress fitting
Namine was measured for her Make A Wish dress.
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State Fair
Namine got to go to the Wisconsin State Fair not once, not twice, but three times.
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Bee party
How many birthday parties is this kid gonna get? :D
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Family picnic
The most important part about our family picnic is inclusion.
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Results from the pain clinic
Namine visited the pain clinic, better known as the headache clinic, in a follow-up appointment.