Jessica
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Home!
Today Namine comes home. She will have to go back in January for her second heart surgery which is earlier than they expected, but she is growing and doing what they wanted and now it is time. At least this visit will be planned. I am on my way to go bring Paul some lunch…
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The Best Christmas Gift!!!
Hello again from the hospital.
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Echo Cardiogram
I said that I would let you all know what the plan is for now. They did her echo this afternoon and it came back inconclusive, because of the obstruction her lungs give to seeing her heart. So the plan is to give her a shot of radiation so her blood glows under a special…
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Back Again:(
Well folks,We had been home for almost a week and throughout the week Namine’s heart rate would jump to about 220 beats per minute. This happened a couple of times throughout the week, and we just brushed it off thinking it was our wonky pulse ox. On one other night her apnea monitor went off…
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Home again home again Jigidy jig:) Again:D
Happy Holidays to you all!! Paul and I have been sort of out of it lately with getting new training and trying to figure out the nursing schedule and all of Namine’s changes, so we apologize for not keeping you in the loop. We brought Namine home on Monday of this week, and she is…
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Home on Monday
Hello Family and Friends,We are going home on Monday December, 15. YAY!!!!! Paul and I have done our training on the vent/c-pap machine. We both get to spend the night at the hospital on Saturday :( The bed isn’t the most comfortable. Whatever we have to do to get her home, we don’t care. We…
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4th Floor
Hello all,Namine has finally moved to the 4th floor. We moved up yesterday. She is doing a world better than when we brought her in, but she still has a way to go. It is not her heart thank God, but it her lungs. The HME is causing to much stress when we have to…
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Thanksgiving!
Well I forgot to post last night, so I am doing it today. Paul and I went to go see Namine yesterday. I was finally feeling better, but not today. We got her dressed up in her baby’s first Thanksgiving day outfit, well half of it. She is getting so big that she actually fit…
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Vent
Yesterday Paul went after work to see Namine and she was back on the vent. She had a couple of times where she destated and so for her best interest they put her back on the vent. One of the doctors said that they may have been rushing her and they don’t want to do…
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Off Vent
Hello Everyone,I just wanted to let you all know that we are still in the hospital, but definitely on our way home again. They took Namine off of the C-Pap yesterday and she is doing excellent. She is till on quite a bit of oxygen, but they are slowly weening her down. She has come…
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PICU
Dear Family and Friends,We have re-entered the hospital. We are in the PICU again. Namine started to have more secretions and became really tired and some what irritable. Namine was doing ok until Thursday morning when she started to have to be suctioned at least every hour if not more than that with all of…
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Home again home again Jigidy jig:)
YAY!!! Were are home, as you have read from the previous post. Our first night was a little rough, but we got through it. Paul was the one that I thought wouldn’t hear any of her alarms because he sleeps like a brick, but that wasn’t the case. It was me that slept through the…