Jessica
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YAY for equipment changes.
Man oh man. If everyone were trained to make changes that would be exciting for us. We had a couple of doctors visits this past week and they made some vent changes. The first changes I could do myself, but the other changes neither Paul or myself could change so we have to wait for…
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Holy Cow Where Has The Time Gone!
Hello everyone, I am so sorry that we have not been keeping up on this. It is has been a long and fantastic ride being home. We have celebrated our very first holiday home!!!! YAY!! We almost thought that we weren’t going to be able to. She came down with a viral infection the week…
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CHW
Hello All, Namine was home for a record of 16 days this time. Paul and I brought her in Wednesday night with a fever, loose stools and mega suctioning. They did a bunch of tests and pumped her full of fluids and she still had a slight fever. Yesterday the doctors put her on isolation…
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I can finally say it, HOME!
God has answered and is still answering all of our prayers. He has been working miracles from day one. He is with us no matter what. I started this blog off the way I did because the rumors are true, Yes all of you that is right, Namine came home on Monday. It has been…
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Well What Can I Say.
Hello Family and Friends, Well it is a day that has come and gone. Namine was supposed to come a long time ago, but that day was pushed back for one reason or another. Then she was supposed to go home a different day that was pushed off for one reason or another. Then she…
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We Hate Being Sick!!
Warm weather what have you done. You have made our allergies go bonkers, bonkers, bonkers so my poor husband is sicker than a dog. He aches and sneezes his ribs hurt from falling on the ice, our room is littered with Kleenex (oh wait he picked them up). Namine is stuck at CHW I hope…
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SUNDAY!!!!!!
Sunday is the official day set by Doctor Gordon. We hope that Namine can start to tolerate her feeds all day by today, or I don’t know what they plan on doing. She did alright yesterday, but she did throw-up and we think it was just because her feeds are too close together. They keep…
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Home On Monday!
Hello Everyone, Namine is coming home on Monday, February 2nd. Great Grandpa has a great birthday present:) Namine is doing well. She has recovered surprisingly well after having this heart surgery. She is down to 30% oxygen not only on the vent but on her trac collar and doing fabulous. She is stating in the…
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Surgery Finally
Namine is going on Tuesday finally for her heart surgery that has been long awaited. She is the first case on Tuesday morning. Namine had a hematoma on her right arm that burst on Thursday night. It was full of green and yellow puss and bled quite a bit, so they have it dressed up.…
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Surgery
Namine is scheduled for her heart surgery next Thursday. They had her on the schedule for this Friday but her surgeon was going to be out of town over the weekend and he wasn’t comfortable with that so they moved her surgery. It is going to be a scary one. I know that the last…
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Namine’s Exam
Hello Everyone,Namine had her cath exam this morning/afternoon. She went down at 11 and didn’t come back until 2:30. She was supposed to go down at 10, but I have no idea why it was so late by the time they came and got her. Well enough with the jibber jabber. The cath doctor told…
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Rewind
Namine is not home. She was supposed to come home last Friday but her heart rate was still high and she had a few destats. We talked with cardiology and the resident and they decided to keep her over the weekend for further observation. They also wanted to keep her until the cardiologists had time…