Jessica Avatar

Jessica

  • News!

    Hello all, It was a not so fun and fun day today.  We had a visit back at teach vent clinic where they took a trach asperate, or culture,  to see what is growing if anything. As we ran some errands I got a call for different breathers for Namine. While on the phone the…

  • Clinic Day

    Namine had clinic visits galore today. She had a swallow study, determining how well she can eat and drink; a pre-surgery meeting with Dr. Denny, her plastic surgeon; and a visit to GI (gastrointestinal).

  • Poopiness

    Well I don’t know where to begin.  Namine started with just more secretions and a slight fever at the beginning of the which grew to no fever, but vomiting and diarrhea like crazy.  She has had probably about 7 blowouts since Friday.  We have talked with her pulmanologist and the regular pediatrician and now the…

  • Today

    Namine has had quite a busy day.  She was sitting and playing and visiting with Great Grandma and Great Grandpa and watching it snow.  Namine also has hit the stage of stranger danger.  It has not been fun all day.  Everyone that has come into the room that was not family she cried and clung to…

  • Friends of the Family

    Hello everyone! One of my dear friends from college is pregnant and she is only 30 weeks along and she is having the baby if not today than soon. We need our warriors to storm heaven for her and her unborn baby. Please pass the word along so that there are many mouths praying for…

  • Birthday Surprise!

    Namine is doing awesome. She is having a blast with her new kid kart and is just enjoying the summer.

  • Birthday Party!

    Wow! We get to celebrate a very deserving and happy 1st birthday. Long ago over a year ago we were told that she might not make it this far, but she has and she is doing better than anyone can believe. She is the joy of our lives and the happiness that never goes away.…

  • Finally:)

    Sorry everyone for not posting more often.  It has been quite a hectic past couple of months.  Namine has been home since March and doing great.  We spent two days in the hospital for heart monitoring and they called it equipmentitis.  She has been stating in the low 90’s to even 100% O2 stats at…

  • Jaw Distraction

    Hello to Everyone, Paul and I brought Namine in to see Dr. Denni this past Monday to find out when she will be able to have her jaw distraction done, so we can remove the trac and g-tube. It was mostly bad news but some good news. We have to ween her faster off of…

  • Hospital

    Hello Everyone, I just wanted to quickly update everyone.  We had to bring Namine in on Sunday to the Hospital.  She was having crazy heart rates.  They still don’t know what was causing it and they sent us home today.  If I get a video of her laughing and talking then I will have Paul…

  • Craziness

    Well it has been a crazy weekend and a crazy week ahead. Namine doesn’t have any appointments this week, but starting next Friday I think we have one every day for the next couple of weeks. I will try and take a whole bunch of pictures and put them up for everyone. I shouldn’t say…

  • YAY for equipment changes.

    Man oh man. If everyone were trained to make changes that would be exciting for us. We had a couple of doctors visits this past week and they made some vent changes. The first changes I could do myself, but the other changes neither Paul or myself could change so we have to wait for…