So Namine’s trach was put back in, making her a much happier baby. Her chest drainage tubes were also removed; her left and right arterial lines were removed, but the one in her arm is still in. They also made sure that her new G-tube is in correctly before they start feeding her. They may do that tonight, but tomorrow morning is more likely. She’s down from 12 pumps to 3. Less equipment is always a good thing.

You’ll notice I’ve changed the overall color of the site. I hope it’s pink, I can’t really tell. ;)
I have also changed the tab links at the top. Click the photos and videos links to see!

  • Kim Weber

    Glad to hear all is going well for your little darling! She is so cute! Hope she is home soon!
    Kim Weber

  • Michele

    SHE”S SOOOOOOOOOOOOOOOOOO CUTE!!!!!!!!!!!!!!!!!!!!!!
    Get the “singing” videos up please!!
    We love you all.
    Grandma E

  • Connie

    Glad to see she’s doing better :) Pretty name, did you get it from KH Chain of Memories?

    Mom to Billy 8
    (Caudal Regression/VACTERLS incl. tethered spinal cord (repaired 9/00, 8/06) perineal fistula imperforate anus (repaired 5/00, managed with daily Exlax), single kidney, PDA (closed on its own), malformed pelvis and hemisacrum, long segment lumbosacral levoscoliosis with hemivertebrae (spinal fusion T11-sacrum 8/06), extra left rib, genital anomalies with hypospadius (repairs 9/00,11/00, 5/01,12/01,12/03), hypoplastic left leg with clubfoot (repaired 5/01) tibial torsion and 4.5cm length discrepancy – wears AFO and 3.5cm lift, SUA, GI reflux, DGE/gastroparesis, mild swallowing dysphagia, eating issues and the most beautiful smile ever)

    Our website: