Femoral Facial Syndrome
Femoral Facial Syndrome is a rare disorder characterized by underdeveloped thigh bones (femurs) and unusual facial characteristics. It presents with a very broad range and variety of symptoms. Namine’s diagnosis of this disorder includes her Caudal Regression Syndrome, Pierre Robin Sequence, and Double Inlet Left Ventricle Heart Defect.
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Mysterious leg pain
Namine thought her leg was broken. It wasn’t, fortunately, but we don’t know what caused the pain.
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X-rays, routine and otherwise
What was meant to be a routine trip to the orthopedic doctor ended up including one more X-ray than we expected.
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Talk at the Medical College
It’s that time again! We were asked back to the Medical College of Wisconsin to give our yearly talk on equipment and accessibility.
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Wheelchair loaner
Namine received a “new” (to her) wheelchair and was measured for her real replacement chair.
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Foot laceration stitches out
Namine got the stitches in her foot taken out.
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Pain managed, time to break free!
Namine was given the all-clear to go home! We just had to wait for our discharge papers.
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Foot laceration pain management
With the larger threat of infection all but removed, the focus now is on pain management.
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Foot laceration complications
The pain in Namine’s foot from her fall was so out of control that we ended going back to the ER.
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My tipped wheelchair
My dad wrote about when I tipped my wheelchair. This is what happened, from my point of view.
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Tipped wheelchair and foot laceration
Namine’s wheelchair fell on top of her. Fortunately, she did not break any bones. She did suffer a pretty nasty cut on her foot.
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Picking out new glasses frames
We took Namine to get her new glasses.
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Zipper shoes
Namine has settled on a pair of shoes she likes and likes to wear.