·  Normal is a dryer setting.

femoral facial syndrome

Femoral-Facial Syndrome is a rare disorder characterized by underdeveloped thigh bones (femurs) and unusual facial characteristics. It presents with a very broad range and variety of symptoms. Namine’s diagnosis of this disorder includes her Caudal Regression Syndrome, Pierre Robin Sequence, and Double Inlet Left Ventricle Heart Defect.

Zoo a la Carte

We (Grandma and Grandpa) recently had the pleasure of taking Namine to Milwaukee à la Carte at the Zoo, and predictably, she had a great time. Local restaurants set up booths around the zoo where food could be purchased, so that in addition to seeing the animals, we enjoyed some tasty treats.