Femoral Facial Syndrome
Femoral Facial Syndrome is a rare disorder characterized by underdeveloped thigh bones (femurs) and unusual facial characteristics. It presents with a very broad range and variety of symptoms. Namine’s diagnosis of this disorder includes her Caudal Regression Syndrome, Pierre Robin Sequence, and Double Inlet Left Ventricle Heart Defect.
Mysterious leg pain
Namine thought her leg was broken. It wasn’t, fortunately, but we don’t know what caused the pain.
X-rays, routine and otherwise
What was meant to be a routine trip to the orthopedic doctor ended up including one more X-ray than we expected.
Talk at the Medical College
It’s that time again! We were asked back to the Medical College of Wisconsin to give our yearly talk on equipment and accessibility.
Namine received a “new” (to her) wheelchair and was measured for her real replacement chair.
Foot laceration stitches out
Namine got the stitches in her foot taken out.
Pain managed, time to break free!
Namine was given the all-clear to go home! We just had to wait for our discharge papers.
Foot laceration pain management
With the larger threat of infection all but removed, the focus now is on pain management.
Foot laceration complications
The pain in Namine’s foot from her fall was so out of control that we ended going back to the ER.
My tipped wheelchair
My dad wrote about when I tipped my wheelchair. This is what happened, from my point of view.
Tipped wheelchair and foot laceration
Namine’s wheelchair fell on top of her. Fortunately, she did not break any bones. She did suffer a pretty nasty cut on her foot.
Picking out new glasses frames
We took Namine to get her new glasses.
Namine has settled on a pair of shoes she likes and likes to wear.